Wednesday, November 08, 2006

Update

I told you all that I would post more about Autumn's care and our schedule over the next few weeks / months. Finally tonight, I have a few free minutes to explain it more to you.

The biggest thing that we have to do here at home for her is change the dressings on her dialysis catheter and her broviac IV. This is fairly uneventful and just a matter of producing a semi-sterile environment, cleaning the wound and reapplying the new bandage. We must also flush her IV daily and change the cap on her IV weekly. We are very comfortable doing these things and know that it just another part of her care.

As far as feeding goes, as you probably noticed in her pictures, Jen & I took her feeding tube out the other day. When we were at the hospital, they measured every little ml that they put in her and weighed every single ml that came out. The day that we left the hospital, the doctors decided that they were comfortable enough with the direction that she was going to allow Jen to breast feed her on demand, as you would a normal baby. This was a huge praise for us to allow this to happen. It has been a big weight lifted off from us to not have to measure everything, but also to allow Jen to have this time with Autumn. All we have to do is make sure that she is still having so many wet/soiled diapers a day. Also, 3 times a day - Autumn has some extra sodium, calcium & iron to help her levels. We do send daily weights to her doctors in Ann Arbor, another way for them to monitor kidney function. She is eating well and is continuing to gain, what appears to be, good weight. Another Praise!! We are so thankful.

We do have an appointment in Ann Arbor on November 20th with her kidney doctors. At that time, they will draw labs and check her creatinine and BUN levels (with us knowing that they are still going in the right direction). If everything looks good that day, they will plan the surgery to remove the dialysis catheter and broviac. We are believing that this will be another big step in God's plan for His healing of Autumn. He is always so faithful to His word and keeps His promises. We Believe!! Please join with us praying for Autumn and for Dr. Kershaw as we prepare for this big day in her little life.

The only other major part of her care is going to start in January (when Jen goes back to work). We had planned to send Autumn to a wonderful Christian daycare, but given her sensitivity to germs and other kids, her doctors are not allowing her to go to a daycare. We know that we can't protect her from everything, but will do all that we can to help her have a healthy winter. The doctors reminded us how important that it is to keep her healthy these first 3-6 months. Nourishment is very important to her kidneys continuing to heal. Any sickness that slows down her eating will very likely continue damage to her kidneys, so we are going to protect her as much as we can this first six months home. Our house is filled with anti-bacterial soap and bottles of hand sanitizer. We will do all that we can to protect her and that means hiring someone to come into our home to watch Autumn from January to June. Please pray for us, that God will lead us to the correct person to help us care for Autumn this first six months or so. We know that God is faithful to us in all ways and we are thankful to Him for that. He is our Sustainer.

It has been such a joy to run into some of you since we have been back home. You have been such an encouragement to us and we love you all. You are very special to us. We may just have to throw a party when Autumn is well. A celebration of God's miracles.

9 comments:

Anonymous said...

Hey Aaron and Jen...
Good to hear that things are still improving. God has done such a miracle here. I have some good news too. Since Autumn was born, Nate Lewis has started coming to our church...and was saved. And also, Sean Long just started coming too. I love you, and you're in my prayers.

Love, The cooler Gerow girl ;)

Anonymous said...

Yes we will stand with you and believe that God is going to continue to heal Autumn. Our God is bigger than all of this and HE does love us more than we can imagine. And yes I believe when the time is right a celebration to the Lord for Autumn would be great. The Borders

Anonymous said...

Good Morning Hess Family:

I am so glad to hear everything is going so well. I know a visit to see you and your little miracle is not going to happen soon because of limited company. I just want you to know that you are all in my prayers and will continue to pray for complete healing. Autumn is very fortunate to be placed in a christian family where prayers were needed at the most critical times. You are very special. Keep posting pictures. I love to see Jayna and her big smile when holding Autumn. It brings back so many memories of when Rachelle welcomed her sister Jackie into this world 27 years ago. That special time will never be erased from my memories.
Take care.
Love, Aunt Mary

Shoemaker Family said...

We're joining you in prayer for the right caretaker to be shown to you. God will provide. We believe.

Anonymous said...

Just checking in to say "Hi" and ya'll continue to be in my prayers. You are all very special and are loved. Keep your eyes fixed on Jesus, the Author (!) and Perfecter (!)of our faith.
Love, the Pope's Wife

Anonymous said...

We will pray that you have the right person come your way for the care of Autumn. Staying at home is a part of God's plan and he will provide. We continue to pray for all of you and hope to see you sometime soon.
Jake, Jen, Lydia and Garret

Anonymous said...

We are so thankful that Autumn is continuing to heal. What a miracle baby she is. Thank God for all that he has done for your family. We will continue to pray for your family and for you to find the care giver you need for Autumn. Take care!

Love you lots
Uncle Tom & Aunt Paula

Anonymous said...

Hi Jen and Aaron,
Glad to read that Autumn is continuing to improve. Being at home with a loving family certainly is a positive for all of you. We continue to pray for healing and will add prayers for the right caregiver to be sent to your home. Love, Aunt Myrna

Stevie Ray & Misty Dawn said...

We are excited to hear that things are going so well. We continue to lift the family everyday!
Love, The Cline Clan