- Autumn's kidneys are functioning at about 20%. If a normal person has 100% kidney function - Autumn's are around 20%. Any lower that 20 and they will put her back on dialysis.
- They can do many things to compensate for what her kidneys aren't doing for her. They have decreased her calcium and increased her sodium. They are fairly concerned about the amount of protein that is still in her urine, as some protein can tear apart the kidney filters when it goes through. They are considering giving her shots to help stop this protein from getting through the filters.
- They will also closely monitor her growth (height) to be sure that her lack of kidney function is not affecting her bone growth as it sometimes does in small children.
They aren't sure what is going to happen from here. They don't have a lot of data or history for this kind of case - so they just plan to keep checking her levels and adjust things according to what her body is doing. They have mentioned a kidney transplant, but that wouldn't happen for a little over a year, so we are not pursuing that route just yet. We are still believing and trusting in God - that he will continue to heal her and make her well. She was 4 months old yesterday and we are so thankful to Him for bringing her so far in these few months. She is already over 12 pounds and is doing all sorts of normal baby stuff. Her sister can make her smile and even laugh on command. We are rejoicing that God chose us to raise this little girl - she has taught us so much already. I can't wait to see what else God has in store for us (her) in the coming weeks, months, & years!! Keep praying for her as she continues to fight - keep praying for us as we strive to be our best for each other and for these girls. We love you all!!
3 comments:
Dearest All,
You are not, nor ever have been far from our thoughts and God frequently brings you to mind at which time I gladly raise my heart of praise to Him for you all and for your strength and encouragment. And of course, little Autumn's place to be in the very center of His loving Fatherly Hand. Chin-up.
Love to ya'll,
Colleen
AL & I wanted to say hello! just checking in on you guys. glad things are going ok. we continue to pray for autumn & your family!
LOVE--AMANDA
We continue to lift all of you in our prayers. Your strength and faithfulness to Him will be rewarded!
Love always--Lori & Dean
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