Autumn had an appointment in Ann Arbor today with the Chronic Kidney Disease Clinic, as well as her yearly ultrasound. Not too much has changed in her kidney functioning. Her kidneys are still quite small, but they haven't gotten any smaller since last year. This is a blessing! Her lab work was all pretty good. This is another blessing! Her blood pressure is still quite high, which is not a good thing. They increased some of her medicine and would like us to take her blood pressure regularly at home. We should have our own blood pressure cuff soon. Finally, she isn't gaining weight like she should be. If you know her at all, she is SUPER busy and burns off every calorie she takes in and then some. Our wonderful nutritionist instructed us to put butter on her food so she has some extra fat calorie intake. Another suggestion was to mix a special concentration with her new formula, which is special for those with renal issues. Other than that, they are watching her labs a little more often and want to see us back in June.
After our appointment, we visited the NICU. We were able to see some of the wonderful people who took care of Autumn while she was there. They so enjoyed her running down the hall, talking, playing, signing, etc. They said seeing babies doing as well as her gave them encouragement that their jobs were making a difference. We thanked them for being God's instruments in Autumn's life. Also, a dad of a current NICU baby walked in while we were there and said to Aaron, "There is hope beyond here," as he saw Autumn. I am so blessed when I see God using our children to encourage others. He has a plan and a purpose for everthing. His greatest plan was played out through His son Jesus. Coming to earth as a helpless, dependent little baby; growing up into a man; living blameless in a sinful world; dying an innocent death on the cross. God's plan in all this...TO GIVE YOU AND I AN OPPORTUNITY TO HAVE ETERNAL LIFE WITH HIM. What a loving plan that one was. I pray this Christmas season fills your family with many blessings, especially the blessing of a loving Savior.
Stay tuned to the Hess blog...I am on break and have lots of fun things to share!
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Hi Aaron, Jenny and girls:
Just want to wish you a very Merry Christmas and Healthy New Year. I am glad to read that Autumn offers other people hope. Aaron, your posts are so special in the way you write them. When I read them, it is like praying with you. I love you guys. Take care!
Love, Aunt Mary
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